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Viagem ao ritmo da doença crónica
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O presente trabalho consubstancia-se no método de avaliação final do Mestrado em Sociologia, na especialização em Comunidades e Dinâmicas Sociais da Faculdade Ciências Sociais e Humanas da Universidade Nova de Lisboa (FCSH) para obtenção do grau de Mestre. A dissertação assenta num estudo sobre a problemática das doenças crónicas, nomeadamente o Lúpus, e procura identificar quais as implicações que afetam os pacientes e a família com esta doença, quais as experiências de vida e, simultaneamente, compreender em que medida a integração social no mercado de trabalho é afetada. Por considerarmos que as doenças crónicas surgem de maneira silenciosa, estas são responsáveis pelas alterações na identidade da própria pessoa que se refletem na família, no comportamento, nas atitudes e vivência, na maneira de pensar, sentir e agir em sociedade.
Metodologicamente recorremos a uma pesquisa qualitativa, tendo um carácter descritivo baseada em 12 entrevistas, realizadas a 12 pessoas portadoras de dois tipos de Lúpus (sistémico / discoide), residentes numa área que consideramos mais deficitária, situada no Alentejo e 1 entrevista a uma empresa, situada em Lisboa. Os resultados obtidos permitiram concluir que as barreiras sociais encontradas contribuíram para a exclusão social dos doentes portadores dessa doença, nomeadamente no acesso ao mercado de trabalho e respetiva integração social.
The current work is part of the final evaluation method of the Master in Sociology, with specialization in Communities and Social Dynamics from the Faculty of Social and Human Sciences, New University of Lisbon. The dissertation is based on a study of the problem of chronic diseases, such as Lúpus and intends to identify its implications to patients and their families at the society level, explore their life experiences and also understand the extent to which patients’ social integration into the labor market is affected. By considering that chronic diseases emerge silently, these can be responsible for the change in patients’ identity and be reflected in their families, behaviors, attitudes and their way of thinking, feeling and acting in society. Methodologically, we performed a qualitative descriptive study, based on 12 interviews with people diagnosed with two types of Lúpus (systemic / discoid) living in an area in Alentejo, that we consider most deficient and 1 interview to a company located in Lisbon. The results showed that social barriers faced by patients contributed to their social exclusion, namely their access to labor market and following social integration.
The current work is part of the final evaluation method of the Master in Sociology, with specialization in Communities and Social Dynamics from the Faculty of Social and Human Sciences, New University of Lisbon. The dissertation is based on a study of the problem of chronic diseases, such as Lúpus and intends to identify its implications to patients and their families at the society level, explore their life experiences and also understand the extent to which patients’ social integration into the labor market is affected. By considering that chronic diseases emerge silently, these can be responsible for the change in patients’ identity and be reflected in their families, behaviors, attitudes and their way of thinking, feeling and acting in society. Methodologically, we performed a qualitative descriptive study, based on 12 interviews with people diagnosed with two types of Lúpus (systemic / discoid) living in an area in Alentejo, that we consider most deficient and 1 interview to a company located in Lisbon. The results showed that social barriers faced by patients contributed to their social exclusion, namely their access to labor market and following social integration.
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Palavras-chave
Doença crónica, Família Integração no mercado de trabalho Chronic disease Family Labor market