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Outcomes in HIV patients. What matters
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HIV has become a treatable chronic disease that affects the quality of life of HIV patients. To provide better care and improve patient’s long-term health beyond survival, the outcomes that health care professionals think matter to them, and their patients must be defined and measured. A qualitative study with semi-structured interviews including experts of nine nationalities found ten outcome categories. Additionally, we observed that there were different perceptions of the term "outcome" and that they were often associated with risk variables among our participants. Our findings also showed that outcomes seem to matter to HIV patients regardless of their cultural background. "Coopetition" will be required to increase overall value to patients. Lastly, we could identify a desire among our study group to measure outcomes beyond viral suppression in a more standardized way to improve patient health.
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Palavras-chave
Value-based health care Outcomes Patient-reported outcomes HIV/AIDS