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Mapping inequalities in rheumatology care in Europe

dc.contributor.authorMoltó, Anna
dc.contributor.authorMiendrova, Anastasiia
dc.contributor.authorGossec, Laure
dc.contributor.authorCarmona, Loreto
dc.contributor.authorBillis, Konstantinos
dc.contributor.authorSzekanecz, Zoltán
dc.contributor.authorAlvaro-Gracia, Jose Maria
dc.contributor.authorStrangfeld, Anja
dc.contributor.authorKloppenburg, Margreet
dc.contributor.authorBrodin, Nina
dc.contributor.authorSwinnen, Thijs Willem
dc.contributor.authorBöhm, Peter
dc.contributor.authorCarvalho, Mariana
dc.contributor.authorFoell, Dirk
dc.contributor.authorKollcaku, Artur
dc.contributor.authorVardanyan, Valentina
dc.contributor.authorFritsch-Stork, Ruth
dc.contributor.authorRemans, Philip
dc.contributor.authorStoilov, Nikolay
dc.contributor.authorAnić, Branimir
dc.contributor.authorMalliotis, Nikolas
dc.contributor.authorBubová, Kristýna
dc.contributor.authorMeisalu, Sandra
dc.contributor.authorIsomäki, Pia
dc.contributor.authorCallhoff, Johanna
dc.contributor.authorTsutskiridze, Maia
dc.contributor.authorBalint, Peter
dc.contributor.authorRyan, John
dc.contributor.authorDruyan, Amit
dc.contributor.authorConti, Fabrizio
dc.contributor.authorZiade, Nelly
dc.contributor.authorMiltiniene, Dalia
dc.contributor.authorDeseatnicova, Elena
dc.contributor.authorBulatovic, Ana
dc.contributor.authorvan Tubergen, Astrid
dc.contributor.authorKrstikj, Ljubinka Damjanovska
dc.contributor.authorBakland, Gunnstein
dc.contributor.authorKorkosz, Mariusz
dc.contributor.authorPinto, Patricia
dc.contributor.authorRezus, Elena
dc.contributor.authorOstojic, Predrag
dc.contributor.authorTarabčáková, Lenka
dc.contributor.authorRotar, Ziga
dc.contributor.authorPlasencia-Rodriguez, Chamaida
dc.contributor.authorEinarsson, Jon Thorkell
dc.contributor.authorAeberli, Daniel
dc.contributor.authorBilgin, Emre
dc.contributor.authorSunar, İsmihan
dc.contributor.authorGarmish, Olena
dc.contributor.authorMacfarlane, Gary J.
dc.contributor.institutionNOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
dc.contributor.institutionComprehensive Health Research Centre (CHRC) - pólo NMS
dc.contributor.pblBMJ Publishing Group
dc.date.accessioned2026-09-10T09:30:01Z
dc.date.available2026-09-10T09:30:01Z
dc.date.issued2026-06
dc.descriptionPublisher Copyright: © 2026 The Authors. Published by Elsevier B.V. on behalf of European Alliance of Associations for Rheumatology (EULAR). This is an open access article under the CC BY license. http://creativecommons.org/licenses/by/4.0/
dc.description.abstractObjectives: To describe inequalities in health indicators relevant for quality of care to people with rheumatic and musculoskeletal diseases (RMDs) across Europe by comparing RMD health system indicators across European Alliance of Associations for Rheumatology (EULAR) member countries. Methods: RheumaFacts is an EULAR initiative to improve the quality of care across Europe by monitoring access to and outcomes of care for people living with RMDs. In this study, we present the first edition of this longitudinal mixed-sources study initiated in 2024. A standardised form including indicators on RMD health resources and organisation, national workforce, and access to care was sent to the 40 National Scientific Rheumatology Societies who were EULAR members in 2024 was sent to the EULAR-member National Scientific Rheumatology Societies of 40 countries. Complementary data on the demographic and economic status of the various countries were extracted from open-source databases such as the WHO and World Bank datasets. Analyses were descriptive. Results: Standardised report forms were returned by 36 of 40 countries (90%). The density of rheumatologists ranged from 0.8 to 6.6 per 100,000 inhabitants (median, 2.9; IQR, 2.1-3.5) across the different countries. The reimbursement of nonpharmacological care on a chronic basis was limited: physiotherapy was reimbursed in 26 of 36 countries (72%), whereas psychological support was reimbursed in only 14 of 36 countries (39%).In 94% of the countries, all conventional synthetic disease-modifying antirheumatic drugs (DMARDs) were available. Despite all countries indicating the availability of at least 1 biologic DMARD, only 12 countries (34%) had access to all biologic DMARDs, and only 18 of 35 (51%) had access to all targeted synthetic DMARDs. Conclusions: Wide cross-national inequalities exist in workforce capacity and reimbursed care for people with RMDs. RheumaFacts delivers the first harmonised basis for monitoring these gaps, enabling EULAR and national societies to track progress and inform health policy makers to advocate for improving the quality of life of people with RMDs.en
dc.description.versionproof
dc.description.versioninpress
dc.format.extent2787299
dc.identifier.doi10.1016/j.ard.2026.05.032
dc.identifier.issn0003-4967
dc.identifier.otherPURE: 167698155
dc.identifier.otherPURE UUID: a5c543b0-97eb-42a8-8fd5-5cabfe8d23cf
dc.identifier.otherScopus: 105043168344
dc.identifier.otherPubMed: 42379951
dc.identifier.urihttp://hdl.handle.net/10362/206245
dc.identifier.urlhttps://www.scopus.com/pages/publications/105043168344
dc.language.isoeng
dc.peerreviewedyes
dc.subjectImmunology and Allergy
dc.subjectRheumatology
dc.subjectImmunology
dc.subjectGeneral Biochemistry,Genetics and Molecular Biology
dc.subjectSDG 3 - Good Health and Well-being
dc.titleMapping inequalities in rheumatology care in Europeen
dc.title.subtitlethe first edition of the EULAR RheumaFacts projecten
dc.typejournal article
degois.publication.titleAnnals of the rheumatic diseases
dspace.entity.typePublication
rcaap.rightsopenAccess

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