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Building Bridges between People with Stroke, Families, and Health Professionals

2024-01-04Artigo científico Acesso aberto
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dc.contributor.authorMendes Pereira, Carla
dc.contributor.authorMatos, Mara
dc.contributor.authorCarvalho, Daniel
dc.contributor.authorMacedo, Patrícia
dc.contributor.authorCalheiros, José M.
dc.contributor.authorAlves, Janice
dc.contributor.authorPaulino Ferreira, Luís
dc.contributor.authorDias, Teresa L.
dc.contributor.authorNeves Madeira, Rui
dc.contributor.authorJones, Fiona
dc.contributor.institutionUNINOVA-Instituto de Desenvolvimento de Novas Tecnologias
dc.contributor.institutionCTS - Centro de Tecnologia e Sistemas
dc.contributor.institutionNOVALincs
dc.contributor.pblMDPI - Multidisciplinary Digital Publishing Institute
dc.date.accessioned2024-09-30T22:30:59Z
dc.date.available2024-09-30T22:30:59Z
dc.date.issued2024-01-04
dc.descriptionFunding Information: This research was funded by Fundação para a Ciência e Tecnologia (FCT, literally The Foundation for Science and Technology), grant number EXPL/SAU-SER/1478/2021 (http://doi.org/10.54499/EXPL/SAU-SER/1478/2021). Funding Information: C.M.P., M.M., D.C., J.M.C., J.A., P.M., R.N.M., T.L.D. and L.P.F. declare no conflicts of interest. F.J. is founding director and CEO of Bridges Self-Management, a social enterprise run in partnership with St Georges University of London and Kingston University, conducting research and training in self-management support in health and social care. F.J.’s research is supported by the National Institute for Health Research (NIHR) Applied Research Collaboration (ARC) South London at King’s College Hospital NHS Foundation Trust. The funders had no role in the design of the study, in the collection, analyses, or interpretation of data, in the writing of the manuscript, or in the decision to publish the results. Publisher Copyright: © 2024 by the authors.
dc.description.abstractEvidence-informed interventions for stroke self-management support can influence functional capability and social participation. People with stroke should be offered self-management support after hospital discharge. However, in Portugal, there are no known programs of this nature. This study aimed to develop a person-centered and tailored blended care program for post-stroke self-management, taking into account the existing evidence-informed interventions and the perspectives of Portuguese people with stroke, caregivers, and health professionals. An exploratory sequential mixed methods approach was used, including qualitative methods during stakeholder consultation (stage 1) and co-production (stage 2) and quantitative assessment during prototyping (stage 3). After ethical approval, recruitment occurred in three health units. Results from a literature search led to the adaptation of the Bridges Stroke Self-Management Program. In stage one, 47 participants were interviewed, with two themes emerging: (i) Personalized support and (ii) Building Bridges through small steps. In stage two, the ComVida program was developed, combining in-person and digital approaches, supported by a workbook and a mobile app. In stage three, 56 participants evaluated prototypes, demonstrating a strong level of quality. Understandability and actionability of the developed tools obtained high scores (91–100%). The app also showed good usability (A-grade) and high levels of recommendation (5 stars).en
dc.description.versionpublishersversion
dc.description.versionpublished
dc.format.extent20
dc.format.extent2798309
dc.identifier.doi10.3390/jcm13010300
dc.identifier.issn2077-0383
dc.identifier.otherPURE: 99710136
dc.identifier.otherPURE UUID: 461f7244-a8b0-49ef-91db-8367a947c51a
dc.identifier.otherScopus: 85181924038
dc.identifier.otherWOS: 001140349400001
dc.identifier.otherPubMed: 38202307
dc.identifier.otherPubMedCentral: PMC10779663
dc.identifier.urihttp://hdl.handle.net/10362/172727
dc.identifier.urlhttps://www.scopus.com/pages/publications/85181924038
dc.language.isoeng
dc.peerreviewedyes
dc.subjectchange behavior
dc.subjectco-production
dc.subjecteHealth
dc.subjectmHealth
dc.subjectquality
dc.subjectself-efficacy
dc.subjectself-management
dc.subjectstroke
dc.subjectusability
dc.subjectGeneral Medicine
dc.subjectSDG 3 - Good Health and Well-being
dc.titleBuilding Bridges between People with Stroke, Families, and Health Professionalsen
dc.title.subtitleDevelopment of a Blended Care Program for Self-Managementen
dc.typejournal article
degois.publication.issue1
degois.publication.titleJournal of Clinical Medicine
degois.publication.volume13
dspace.entity.typePublication
rcaap.rightsopenAccess

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