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Normalising participatory health research approaches in the WHO European region for refugee and migrant health

2024-06Recensão Acesso aberto
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dc.contributor.authorMacFarlane, Anne
dc.contributor.authorHuschke, Susann
dc.contributor.authorMarques, Maria J.
dc.contributor.authorGama, Ana
dc.contributor.authorKinaan, Walaa
dc.contributor.authorHassan, Ahmed
dc.contributor.authorPapyan, Anna
dc.contributor.authorPhelan, Helen
dc.contributor.authorSeveroni, Santino
dc.contributor.authorKumar, Bernadette
dc.contributor.authorDias, Sonia
dc.contributor.institutionComprehensive Health Research Centre (CHRC) - Pólo ENSP
dc.contributor.institutionEscola Nacional de Saúde Pública (ENSP)
dc.contributor.institutionCentro de Investigação em Saúde Pública (CISP/PHRC)
dc.contributor.pblElsevier
dc.date.accessioned2024-07-01T22:33:22Z
dc.date.available2024-07-01T22:33:22Z
dc.date.issued2024-06
dc.descriptionFunding Information: In addition to academic and health service colleagues involved in case studies 1, 2 and 3, we wish to acknowledge the following organisations and (with permission) the following individuals: Community organisation that collaborated in case study 1- Doras, Limerick, Ireland; Funder case study 1= Irish Research Council, New Foundations Award; Quote case study 1- Ewa Zak-Dyndal; Community organisations that collaborated in case study 2\u2013Intercultural Diversity Education Centre, Ireland and Shannon Family Resource Centre; Funder case study 2\u2013Health Research Board, Dublin, Ireland (HRA-PHR-2015-1344); Quote case study 2\u2013Colette Bradley; Community organizations that collaborated in case study 3\u2013AD SUMUS\u2013Associa\u00E7\u00E3o de Imigrantes de Almada; AJPAS\u2013Associa\u00E7\u00E3o de Interven\u00E7\u00E3o Comunit\u00E1ria; Alto Comissariado para as Migra\u00E7\u00F5es; ALCC\u2013Associa\u00E7\u00E3o Lusofonia Cultura e Cidadania; Associa\u00E7\u00E3o Casa-da-\u00CDndia; Associa\u00E7\u00E3o de Imigrantes Mundo Feliz; Associa\u00E7\u00E3o Isl\u00E2mica da Tapada das Merc\u00EAs e Mem Martins; Associa\u00E7\u00E3o Lusofonia Cultura e Cidadania; Associa\u00E7\u00E3o Unidos de Cabo Verde; Casa do Brasil; Centro Porta Amiga de Almada\u2013AMI; Cruz Vermelha Portuguesa\u2013Delega\u00E7\u00E3o de Braga; InPulsar- Associa\u00E7\u00E3o para o Desenvolvimento Comunit\u00E1rio; NIALP\u2013Intercultural Association Lisboa; Prosaudesc\u2013Associa\u00E7\u00E3o de Promotores de Sa\u00FAde Ambiente e Desenvolvimento S\u00F3cio Cultural; Solidariedade Imigrante\u2013Associa\u00E7\u00E3o para a Defesa dos Direitos dos Imigrantes; UAI\u2013Associa\u00E7\u00E3o Cultural Luso-brasileira de Apoio \u00E0 Integra\u00E7\u00E3o em Portugal; Funder case study 3 Fundo para o Asilo, Migra\u00E7\u00E3o e Integra\u00E7\u00E3o (Ref.PT/2021/FAMI/693). AG is supported by FCT - Funda\u00E7\u00E3o para a Ci\u00EAncia e Tecnologia, I.P. (Reference CEECINST/00042/2021/CP1773/CT0001 and DOI identifier 10.54499/CEECINST/00042/2021/CP1773/CT0001). Publisher Copyright: © 2024
dc.description.abstractWhile people's involvement in health research is increasingly the encouraged norm in many countries, the involvement of refugees and migrants in research about their health is rare. Here, we call for a paradigm shift in the field of refugee and migrant health to make participatory health research routine, i.e. normalised. To disrupt ‘business as usual’, we synthesise evidence about meaningful research partnerships and features of inclusive participatory spaces. We present examples of decolonial, culturally attuned methods that can be used to reimagine and reinvigorate research practice because they encourage critical reflexivity and power-sharing: arts-based research using music and singing, participatory learning and action research, Photovoice and co-design (ideas generation) workshops. We consider the consequences of not making this paradigm shift. We conclude with recommendations for specific structural and policy changes and empirical research questions that are needed to inform the normalisation of participatory health research in this field.en
dc.description.versionpublishersversion
dc.description.versionpublished
dc.format.extent307666
dc.identifier.doi10.1016/j.lanepe.2024.100837
dc.identifier.issn2666-7762
dc.identifier.otherPURE: 94200217
dc.identifier.otherPURE UUID: 69a4ed41-8af2-4b4b-bc97-2402a0abae0b
dc.identifier.otherScopus: 85195638986
dc.identifier.otherWOS: 001247103400001
dc.identifier.otherPubMed: 39119099
dc.identifier.otherPubMedCentral: PMC11306213
dc.identifier.urihttp://hdl.handle.net/10362/169264
dc.identifier.urlhttps://www.scopus.com/pages/publications/85195638986
dc.language.isoeng
dc.peerreviewedyes
dc.subjectCommunity participation
dc.subjectHealth equity
dc.subjectMigration
dc.subjectParticipatory health research
dc.subjectPublic health
dc.subjectInternal Medicine
dc.subjectOncology
dc.subjectHealth Policy
dc.subjectSDG 3 - Good Health and Well-being
dc.subjectSDG 16 - Peace, Justice and Strong Institutions
dc.titleNormalising participatory health research approaches in the WHO European region for refugee and migrant healthen
dc.title.subtitlea paradigm shiften
dc.typereview
degois.publication.titleThe Lancet Regional Health - Europe
degois.publication.volume41
dspace.entity.typePublication
rcaap.rightsopenAccess

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