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The variation of coverage and access to palliative care for cancer patients in eight European countries

2025-12Artigo científico Acesso aberto
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dc.contributor.authorShuftan, Nathan
dc.contributor.authorDayan, Mark
dc.contributor.authorScobie, Sarah
dc.contributor.authorWee, Bee
dc.contributor.authorDimova, Antoniya
dc.contributor.authorAtanasova, Elka
dc.contributor.authorMurauskiene, Liubove
dc.contributor.authorGandré, Coralie
dc.contributor.authorOr, Zeynep
dc.contributor.authorAugusto, Gonçalo Figueiredo
dc.contributor.authorHabicht, Triin
dc.contributor.authorKöhler, Kristina
dc.contributor.authorKahur, Kristiina
dc.contributor.authorAxelsson, Bertil
dc.contributor.authorKroneman, Madelon
dc.contributor.authorde Jong, Judith
dc.contributor.authorde Veer, Anke
dc.contributor.authorBemelmans, Wanda
dc.contributor.authorPereira, Chantal
dc.contributor.authorAggarwal, Ajay
dc.contributor.authorDavies, Joanna
dc.contributor.authorvan Ginneken, Ewout
dc.contributor.authorPanteli, Dimitra
dc.contributor.institutionCentro de Investigação em Saúde Pública (CISP/PHRC)
dc.contributor.institutionComprehensive Health Research Centre (CHRC) - Pólo ENSP
dc.contributor.institutionEscola Nacional de Saúde Pública (ENSP)
dc.contributor.pblBioMed Central (BMC)
dc.date.accessioned2025-08-06T21:21:00Z
dc.date.available2025-08-06T21:21:00Z
dc.date.issued2025-12
dc.descriptionPublisher Copyright: © The Author(s) 2025.
dc.description.abstractBackground: Palliative care aims to maintain quality of life and offer treatment and person-centred care options for people with serious end-stage illnesses and their families. The purpose of this exploratory study was to compare the statutory coverage and access to palliative care for adult services for people with cancer in 8 European countries using a vignette approach. Methods: We used a patient vignette to examine coverage and access to palliative care services across Europe. The palliative care vignette describes a pathway based on guidance for best practices of palliative care patients with incurable cancer. The surveys accompanying the vignette were completed by health services researchers knowledgeable on palliative care, practitioners, government officials, or teams consisting of a health systems expert working together with practitioners. Results: Completed vignettes were received from 8 countries: Bulgaria, Estonia, France, Lithuania, the Netherlands, Portugal, Sweden and England. Services provided for palliative care envisioned in the vignette’s pathway are, generally, covered by the statutory health systems. However, in some countries cost sharing exists for hospital stays, certain medicines and medical aids. Furthermore, coverage of social and financial assessments, home equipment and financial advice varied in nearly every country. Travel times to and availability of palliative care specialists were identified as challenges across nearly all countries. Organizational barriers, societal stigmas and knowledge gaps about what palliative care entails were also found to be areas in need of improvement. Conclusions: The comparative research presented provides further insight how countries organise palliative care, how services are offered and what levels of access exist around Europe. Our study showed differences in the scope of coverage of and access to the care options in the vignette. While responses showed countries have basic levels of coverage and access to services provided, there were variations, such as availability of specialists or the extent travel and waiting times influence care delivery. Settings where patients receive services also varied. As the need for palliative care grows in the future, health ministries and insurers should be increasingly concerned with how to guarantee coverage of and access to this care, as well as aware of best practices among countries facing similar challenges.en
dc.description.versionpublishersversion
dc.description.versionpublished
dc.format.extent1345298
dc.identifier.doi10.1186/s12904-025-01831-1
dc.identifier.issn1472-684X
dc.identifier.otherPURE: 124647471
dc.identifier.otherPURE UUID: 1cee1101-3175-484b-a229-fd183f277a1b
dc.identifier.otherScopus: 105010118450
dc.identifier.otherPubMed: 40624533
dc.identifier.otherWOS: 001523986500002
dc.identifier.otherPubMedCentral: PMC12235821
dc.identifier.urihttp://hdl.handle.net/10362/186144
dc.identifier.urlhttps://www.scopus.com/pages/publications/105010118450
dc.language.isoeng
dc.peerreviewedyes
dc.subjectAccess
dc.subjectBenefit package
dc.subjectCost-sharing
dc.subjectCoverage
dc.subjectFinancial protection
dc.subjectPalliative care
dc.subjectGeneral Medicine
dc.subjectSDG 3 - Good Health and Well-being
dc.titleThe variation of coverage and access to palliative care for cancer patients in eight European countriesen
dc.title.subtitlean exploratory vignette approachen
dc.typejournal article
degois.publication.issue1
degois.publication.titleBMC Palliative Care
degois.publication.volume24
dspace.entity.typePublication
rcaap.rightsopenAccess

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