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What are the unmet needs in people affected by dementia? A scoping review of reviews

2025-07Recensão Acesso aberto
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dc.contributor.authorKoh, Wei Qi
dc.contributor.authorRoes, Martina
dc.contributor.authorde Vugt, Marjolein
dc.contributor.authorSzegin, Dugyu
dc.contributor.authorGonçalves-Pereira, Manuel
dc.contributor.authorMüller, Nicole
dc.contributor.authorGonçalves-Pereira, M.
dc.contributor.authorDiaz, Ana
dc.contributor.authorCasey, Dympna
dc.contributor.authorIngram, Chantal
dc.contributor.authorWalden, Amy Kate
dc.contributor.authorThyrian, Jochen René
dc.contributor.authorNeal, David
dc.contributor.authorComas, Adelina
dc.contributor.authorHopper, Louise
dc.contributor.institutionNOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
dc.contributor.institutionComprehensive Health Research Centre (CHRC) - pólo NMS
dc.contributor.pblTaylor & Francis
dc.date.accessioned2025-11-03T21:39:32Z
dc.date.available2025-11-03T21:39:32Z
dc.date.issued2025-07
dc.descriptionFunding Information: This scoping review of reviews aims to map the existing research evidence on the unmet needs of people affected by dementia, their informal caregivers and professional caregivers. Given that the purpose of this review is to provide a broad overview of this topic, a scoping review methodology is considered appropriate (Munn et al., ). The key research question is: \u2018What are the unmet needs of people affected by dementia, their informal caregivers and professional caregivers?\u2019. Specifically for people living with dementia, this review also aimed to address the secondary question on how unmet needs align with the social health framework, identifying their connections to different social health domains and the factors that influence both unmet needs and social health. This project constitutes part of the work undertaken by the INTEREST (Innovations in diversity and equity in social health research in dementia) working group ( https://goltc.org/projects/goltc-1734516556/ ) funded by the EU Joint Program\u2014Neurodegenerative Disease Research (JPND), to investigate inequity and unmet needs in dementia with a special focus on social health and intersectionality. Publisher Copyright: © 2025 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
dc.description.abstractObjectives: To examine through a social health lens the unmet needs of people affected by dementia, which includes people with dementia, their informal and formal (or professional) caregivers. ‘Unmet needs’ was conceptualised as inaccessible or a lack of appropriate interventions to address identified problems. Method: A scoping review of reviews was conducted. Five electronic databases were searched, followed by a two-stage-screening process. Data were extracted into a standardised sheet comprising study characteristics and domains from the Camberwell Assessment of Needs for the Elderly (CANE), and narratively synthesised. Unmet needs of people with dementia were mapped onto a social health framework. Results: Eighty-five reviews were included. The most frequently reported unmet needs of people with dementia were related to psychological distress, lack of daytime activities, and company, all of which contribute to poorer social health. Informal caregivers most frequently reported a lack of information about the disease trajectory, post-diagnostic care, and home-based practical support. Formal caregivers had related information needs; their psychological distress stemmed from a range of sources. Conclusion: This review of reviews provides a high-level synthesis of the unmet needs of people affected by dementia. It underscores fundamental knowledge gaps and shortcomings in existing interventions and services particularly for formal and informal caregivers.en
dc.description.versionpublishersversion
dc.description.versionpublished
dc.format.extent5817272
dc.identifier.doi10.1080/13607863.2025.2534406
dc.identifier.issn1360-7863
dc.identifier.otherPURE: 128745552
dc.identifier.otherPURE UUID: 2130f1e4-67a7-4b40-bd26-9170259ebfc9
dc.identifier.otherScopus: 105011361034
dc.identifier.urihttp://hdl.handle.net/10362/190061
dc.identifier.urlhttps://www.scopus.com/pages/publications/105011361034
dc.language.isoeng
dc.peerreviewedyes
dc.subjectDementia
dc.subjectinequity
dc.subjectscoping review
dc.subjectsocial health
dc.subjectunmet needs
dc.subjectPhychiatric Mental Health
dc.subjectGerontology
dc.subjectGeriatrics and Gerontology
dc.subjectPsychiatry and Mental health
dc.subjectSDG 3 - Good Health and Well-being
dc.titleWhat are the unmet needs in people affected by dementia? A scoping review of reviewsen
dc.typereview
degois.publication.firstPage1943
degois.publication.issue11
degois.publication.lastPage1966
degois.publication.titleAging and Mental Health
degois.publication.volume29
dspace.entity.typePublication
person.familyNameGonçalves-Pereira
person.givenNameManuel
person.identifier.orcid0000-0003-1419-1306
person.identifier.ridJ-8090-2012
person.identifier.scopus-author-id13609276600
rcaap.rightsopenAccess
relation.isAuthorOfPublication480c7362-c0ec-429d-b709-61a019d13a5d
relation.isAuthorOfPublication.latestForDiscovery480c7362-c0ec-429d-b709-61a019d13a5d

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