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Necessidades de cuidados e recurso aos serviços na demência

2019-05-31Artigo científico Acesso aberto
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dc.contributor.authorGonçalves-Pereira, Manuel
dc.contributor.authorGonçalves-Pereira, M.
dc.contributor.authorMarques, Maria J.
dc.contributor.authorBalsinha, Conceição
dc.contributor.authorFernandes, Alexandra
dc.contributor.authorMachado, Ana Sá
dc.contributor.authorVerdelho, Ana
dc.contributor.authorBarahona-Corrêa, Bernardo
dc.contributor.authorBárrios, Helena
dc.contributor.authorGuimarães, João
dc.contributor.authorGrave, Joana
dc.contributor.authorAlves, Luísa
dc.contributor.authorCaldas de Almeida, Manuel
dc.contributor.authorReis, Teresa Alves
dc.contributor.authorOrrell, Martin
dc.contributor.authorWoods, Bob
dc.contributor.authorDe Vugt, Marjolein
dc.contributor.authorVerhey, Frans
dc.contributor.institutionNOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
dc.contributor.institutionCentro de Estudos de Doenças Crónicas (CEDOC)
dc.contributor.pblBiblioteca Nacional de Portugal, Centro de Estudos Históricos, CELOM
dc.date.accessioned2019-07-26T22:41:53Z
dc.date.available2019-07-26T22:41:53Z
dc.date.issued2019-05-31
dc.description.abstractINTRODUCTION: People with dementia and their relatives should have timely access to formal care in the community. The EU-Actifcare project analysed access to and use of formal services, as related to unmet needs for care. We describe the cohort study implementation and baseline results in Portugal, with a focus on needs for care and service use assessments. MATERIAL AND METHODS: Our convenience sample consisted of 66 dyads of community-dwelling people with mild to moderate dementia and no significant use of formal services, and their informal carers. Measures included the Camberwell Assessment of Need for the Elderly and Resources Utilization in Dementia. RESULTS: People with dementia had unmet needs (mean 1.1; SD 1.7), mainly regarding company (23%), psychological distress (20%), and daily activities (14%). Family caregivers spent 150 minutes/day (median) providing support, and 44% had psychological distress unmet needs. Problems with access to or use of formal services, when present, were frequently due to attitudes or lack of knowledge of any or both members of the dyad. DISCUSSION: The recruitment process was challenging, since the inclusion criteria were restrictive. Not claiming generalizability, we recruited a typical sample of Portuguese people with mild to moderate dementia and no significant formal community support. Levels and type of unmet needs found in some participants would call for formal support, were it not for problems regarding access or use. CONCLUSION: There are difficulties regarding timely access and effective use of formal care in dementia, along with relevant unmet needs.en
dc.description.versionpublishersversion
dc.description.versionpublished
dc.format.extent13
dc.format.extent731202
dc.identifier.doi10.20344/amp.11136
dc.identifier.issn1646-0758
dc.identifier.otherPURE: 13920326
dc.identifier.otherPURE UUID: ebcb6748-0001-40af-96eb-c8de8b68afc4
dc.identifier.otherScopus: 85067458523
dc.identifier.otherPubMed: 31166896
dc.identifier.otherWOS: 000469935100007
dc.identifier.otherORCID: /0000-0003-1419-1306/work/63725119
dc.identifier.urihttp://www.scopus.com/inward/record.url?scp=85067458523&partnerID=8YFLogxK
dc.identifier.urlhttps://www.scopus.com/pages/publications/85067458523
dc.language.isopor
dc.peerreviewedyes
dc.subjectCaregivers
dc.subjectDementia
dc.subjectHealth Services Accessibility
dc.subjectNeeds Assessment
dc.subjectPortugal
dc.titleNecessidades de cuidados e recurso aos serviços na demênciapt
dc.title.alternativeNeeds for care and service use in dementiaBaseline assessment of Portuguese participants in the Actifcare cohort studyen
dc.title.subtitleAvaliação inicial da coorte portuguesa no estudo Actifcarept
dc.typejournal article
degois.publication.firstPage355
degois.publication.issue5
degois.publication.lastPage367
degois.publication.titleActa Médica Portuguesa
degois.publication.volume32
dspace.entity.typePublication
person.familyNameGonçalves-Pereira
person.givenNameManuel
person.identifier.orcid0000-0003-1419-1306
person.identifier.ridJ-8090-2012
person.identifier.scopus-author-id13609276600
rcaap.rightsopenAccess
relation.isAuthorOfPublication480c7362-c0ec-429d-b709-61a019d13a5d
relation.isAuthorOfPublication.latestForDiscovery480c7362-c0ec-429d-b709-61a019d13a5d

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