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Validation of the Portuguese Version of the Scleroderma Health Assessment Questionnaire

2023-11Artigo científico Acesso aberto
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dc.contributor.authorGenrinho, Inês
dc.contributor.authorFerreira, Pedro L.
dc.contributor.authorSantiago, Tânia
dc.contributor.authorCarones, Adriana
dc.contributor.authorMazeda, Carolina
dc.contributor.authorBarcelos, Anabela
dc.contributor.authorBeirão, Tiago
dc.contributor.authorCosta, Flávio
dc.contributor.authorSantos, Inês
dc.contributor.authorCouto, Maura
dc.contributor.authorRato, Maria
dc.contributor.authorTerroso, Georgina
dc.contributor.authorMonteiro, Paulo
dc.contributor.institutionNOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
dc.contributor.institutionComprehensive Health Research Centre (CHRC) - pólo NMS
dc.contributor.pblMolecular Diversity Preservation International (MDPI)
dc.date.accessioned2023-12-04T22:34:29Z
dc.date.available2023-12-04T22:34:29Z
dc.date.issued2023-11
dc.descriptionFunding Information: No funding was received for conducting this study. CEISUC/CIBB is funded by national funds through FCT, Foundation for Science and Technology, I.P., under the Multiannual Financing of R&D Units 2020–2023. Publisher Copyright: © 2023 by the authors.
dc.description.abstractThe Health Assessment Questionnaire Disability Index (HAQ-DI) was completed with five visual analog scales to assess systemic sclerosis (SSc) called Scleroderma HAQ (SHAQ). We performed a validation of the European Portuguese version of SHAQ for patients with SSc. Patients with different forms of SSc from five Hospital Centers were invited. The reliability of the Portuguese SHAQ was evaluated by internal consistency and by test–retest reliability. Content validity was checked by two rheumatologists and by a panel of patients. Construct validity was assessed by structural validity and by known-groups hypothesis tests. Criterion validity was addressed with selected dimensions from the UCLA GIT 2.0, the SF-36v2, and the EuroQoL EQ-5D-5L. A total of 102 SSc patients agreed to participate, 31 of which answered to the retest. HAQ-DI demonstrated high internal consistency reliability (α = 0.866) and SHAQ also showed high test–retest reliability (ICC 0.61–0.95). We evidenced the unidimensionality of all VASs. HAQ-DI scores were worse in males, patients older than 65 years, and individuals with a diffuse form of SSc. Criterion validity was mainly evidenced through the correlation between the HAQ-DI and SF-36v2 physical summary measure (r = −0.688) and EQ-5D-5L index score (r = −0.723). Likewise, the SHAQ overall disease severity VAS was also correlated with SF-36v2 physical summary measure (r = −0.628). Mental score correlations were smaller. With the exception of the Raynaud’s VAS, all the other VASs correlated well with similar clinical variables. This paper provides evidence to demonstrate how reliable and valid the European Portuguese version of SHAQ is, to be used in SSc patients to assess the clinical severity under the perspective of patients.en
dc.description.versionpublishersversion
dc.description.versionpublished
dc.format.extent382432
dc.identifier.doi10.3390/ijerph20227062
dc.identifier.issn1661-7827
dc.identifier.otherPURE: 77650196
dc.identifier.otherPURE UUID: 7095752e-3f0a-401d-8457-f930364c4935
dc.identifier.otherScopus: 85177639732
dc.identifier.urihttp://hdl.handle.net/10362/160868
dc.identifier.urlhttps://www.scopus.com/pages/publications/85177639732
dc.language.isoeng
dc.peerreviewedyes
dc.subjectoutcome assessment
dc.subjectquality of life
dc.subjectSHAQ
dc.subjectsystemic sclerosis
dc.subjectPollution
dc.subjectPublic Health, Environmental and Occupational Health
dc.subjectHealth, Toxicology and Mutagenesis
dc.subjectSDG 3 - Good Health and Well-being
dc.titleValidation of the Portuguese Version of the Scleroderma Health Assessment Questionnaireen
dc.typejournal article
degois.publication.issue22
degois.publication.titleInternational Journal of Environmental Research and Public Health
degois.publication.volume20
dspace.entity.typePublication
rcaap.rightsopenAccess

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