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Addressing relationship quality of people with dementia and their family carers

2024Artigo científico Acesso aberto
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dc.contributor.authorMarques, Maria J.
dc.contributor.authorWoods, Bob
dc.contributor.authorJelley, Hannah
dc.contributor.authorKerpershoek, Liselot
dc.contributor.authorHopper, Louise
dc.contributor.authorIrving, Kate
dc.contributor.authorBieber, Anja
dc.contributor.authorStephan, Astrid
dc.contributor.authorSköldunger, Anders
dc.contributor.authorSjölund, Britt‐Marie
dc.contributor.authorSelbaek, Geir
dc.contributor.authorRøsvik, Janne
dc.contributor.authorZanetti, Orazio
dc.contributor.authorPortolani, Daniel M.
dc.contributor.authorJanssen, Niels
dc.contributor.authorMarôco, João
dc.contributor.authorTan, Eva Y.L.
dc.contributor.authorde Vugt, Marjolein
dc.contributor.authorVerhey, Frans
dc.contributor.authorGonçalves-Pereira, Manuel
dc.contributor.authorThe Actifcare Consortium
dc.contributor.institutionLaboratório Associado de Translacção e Inovação para a Saúde Global - LA Real (Pólo ENSP)
dc.contributor.institutionComprehensive Health Research Centre (CHRC) - Pólo ENSP
dc.contributor.institutionEscola Nacional de Saúde Pública (ENSP)
dc.contributor.institutionLaboratório Associado de Translacção e Inovação para a Saúde Global - LA Real (Pólo NMS)
dc.contributor.institutionComprehensive Health Research Centre (CHRC) - pólo NMS
dc.contributor.institutionNOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
dc.contributor.pblFrontiers Media
dc.date.accessioned2024-10-09T22:44:45Z
dc.date.available2024-10-09T22:44:45Z
dc.date.issued2024
dc.descriptionPublisher Copyright: Copyright © 2024 Marques, Woods, Jelley, Kerpershoek, Hopper, Irving, Bieber, Stephan, Sköldunger, Sjölund, Selbaek, Røsvik, Zanetti, Portolani, Marôco, Janssen, Tan, de Vugt, Verhey and Gonçalves-Pereira.
dc.description.abstractObjective: The quality of the relationship between persons with dementia and family carers influences health and quality-of-life outcomes. Little is known regarding those at higher risk of experiencing a decline in relationship quality, who could potentially benefit the most from interventions. We aimed to identify these risk profiles and explore the underlying factors. Methods: We applied a latent profile analysis to relationship quality data from a 1-year follow-up of 350 dyads of persons with dementia and their informal carers from the Actifcare cohort in eight European countries. Assessments included sociodemographic, clinical, functional, psychosocial and quality-of-life measures. Relationship quality was assessed with the Positive Affect Index. A discriminant analysis explored factors influencing the risk profiles. Results: There were two relationship quality profiles among persons with dementia (gradually decreasing, 74.0%; low but improving, 26%) and two among carers (steadily poor, 57.7%; consistently positive, 42.3%). The ‘gradually decreasing’ profile (persons with dementia) was related to their levels of dependence and unmet needs, along with carers’ social distress and negative feelings, lower baseline RQ and sense of coherence. The ‘steadily poor’ profile (carers) was influenced by their social distress and negative feelings, lower sense of coherence and perceived social support. These two predominant profiles showed significant decreases in quality-of-life over one year. Conclusions: Specific profiles of persons with dementia and their carers are at risk of worse relationship quality trajectories. By considering modifiable related factors (e.g., carers’ stress), our findings can help develop tailored, effective interventions.en
dc.description.versionpublishersversion
dc.description.versionpublished
dc.format.extent428247
dc.identifier.doi10.3389/fpsyt.2024.1394665
dc.identifier.issn1664-0640
dc.identifier.otherPURE: 100889448
dc.identifier.otherPURE UUID: 6e4f5279-189c-44e8-ba11-6518f379408e
dc.identifier.otherScopus: 85204893626
dc.identifier.otherPubMed: 39323968
dc.identifier.otherPubMedCentral: PMC11422148
dc.identifier.otherWOS: 001318727400001
dc.identifier.otherORCID: /0000-0003-1419-1306/work/169264478
dc.identifier.urihttp://hdl.handle.net/10362/173282
dc.identifier.urlhttps://www.scopus.com/pages/publications/85204893626
dc.language.isoeng
dc.peerreviewedyes
dc.subjectAlzheimer’s disease
dc.subjectclose relationships
dc.subjectfamily care
dc.subjectinformal care
dc.subjectlatent profile analysis
dc.subjectlongitudinal study
dc.subjectquality-of-life
dc.subjectsocial support
dc.subjectPsychiatry and Mental health
dc.subjectSDG 3 - Good Health and Well-being
dc.titleAddressing relationship quality of people with dementia and their family carersen
dc.title.subtitlewhich profiles require most support?en
dc.typejournal article
degois.publication.titleFrontiers in Psychiatry
degois.publication.volume15
dspace.entity.typePublication
rcaap.rightsopenAccess

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