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From hypertrophic cardiomyopathy centers to inherited cardiovascular disease centers in Europe. A small or a major step? A position paper from the Nucleus of the Working Group on Myocardial and Pericardial Diseases of the Portuguese Society of Cardiology

2011Artigo científico Acesso aberto
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dc.contributor.authorCardim, N.
dc.contributor.authorCardim, Nuno
dc.contributor.authorFreitas, A.
dc.contributor.authorBrito, D.
dc.contributor.institutionNOVA Medical School|Faculdade de Ciências Médicas (NMS|FCM)
dc.contributor.pblSociedade Portuguesa de Cardiologia | Elsevier
dc.date.accessioned2023-02-10T22:13:22Z
dc.date.available2023-02-10T22:13:22Z
dc.date.issued2011
dc.description.abstractThe prevalence, complexity, clinical importance, heterogeneity and unpredictability of inherited cardiovascular diseases make the development of inherited cardiovascular disease centers an inevitability, with the ultimate goal of reducing the morbidity and mortality associated with these conditions. An inherited cardiovascular disease center may be seen as a subunit of a cardiology department, with health professionals specializing in these types of disorders, organized to provide excellence in all related areas, including diagnosis, treatment, follow-up, prevention, risk stratification and prognosis. Among its objectives are the development of action protocols and the creation of databases that enable patients to be included in national and international research networks. To achieve these objectives these centers should include functional units of clinical and basic sciences, research, training and education, acting in harmony in a holistic approach to patients and their families. As most experience on inherited cardiovascular diseases is based on hypertrophic cardiomyopathy and on "hypertrophic cardiomyopathy centers", these centers represent an excellent opportunity to learn how to set up inherited cardiovascular disease centers. European centers will differ from country to country, reflecting the heterogeneity of national health systems, but will share a common core, presented in this document. Though we are aware that this ambitious project is not at all easy and may be difficult to implement in its entirety - in fact we consider it a major step - our position is that all the efforts to achieve it are worthwhile, considering that the main goal will always be the well-being of those affected by these particular disorders. © 2011 Sociedade Portuguesa de Cardiologia. Published by Elsevier España, S.L. All rights reserved.en
dc.description.versionpublishersversion
dc.description.versionpublished
dc.format.extent7
dc.format.extent210498
dc.identifier.doi10.1016/j.repc.2011.09.005
dc.identifier.issn0870-2551
dc.identifier.otherPURE: 3166287
dc.identifier.otherPURE UUID: 2683c8d0-ee06-41de-a013-26ac3e438f12
dc.identifier.otherRIS: urn:ABD2126ED02BDBAC6F4801D9EBE355A7
dc.identifier.otherScopus: 84855653459
dc.identifier.otherPubMed: 22030325
dc.identifier.otherWOS: 000311860900004
dc.identifier.urihttp://hdl.handle.net/10362/149002
dc.identifier.urlhttps://www.scopus.com/inward/record.uri?eid=2-s2.0-84855653459&doi=10.1016%2fj.repc.2011.09.005&partnerID=40&md5=18c1aaf871037b12e8c512a27189bc88
dc.language.isoeng
dc.peerreviewedyes
dc.subjectHypertrophic cardiomyopathy
dc.subjectHypertrophic cardiomyopathy centers
dc.subjectInherited cardiovascular disease centers
dc.subjectInherited cardiovascular diseases
dc.subjectarticle
dc.subjectEurope
dc.subjecthealth care delivery
dc.subjecthealth care quality
dc.subjecthealth care system
dc.subjecthealth center
dc.subjecthealth education
dc.subjecthypertrophic cardiomyopathy
dc.subjectinherited cardiovascular disease center
dc.subjectmedical research
dc.subjectmyocardial disease
dc.subjectpatient care
dc.subjectpericardial disease
dc.subjectPortugal
dc.subjectwellbeing
dc.subjectCardiac Care Facilities
dc.subjectCardiomyopathy, Hypertrophic
dc.subjectCardiovascular Diseases
dc.subjectGuidelines as Topic
dc.subjectHumans
dc.subjectSDG 3 - Good Health and Well-being
dc.titleFrom hypertrophic cardiomyopathy centers to inherited cardiovascular disease centers in Europe. A small or a major step? A position paper from the Nucleus of the Working Group on Myocardial and Pericardial Diseases of the Portuguese Society of Cardiologyen
dc.typejournal article
degois.publication.firstPage829
degois.publication.issue11
degois.publication.lastPage835
degois.publication.titleRevista Portuguesa de Cardiologia
degois.publication.volume30
dspace.entity.typePublication
person.familyNameCardim
person.givenNameNuno
person.identifier.orcid0000-0002-3812-4872
rcaap.rightsopenAccess
relation.isAuthorOfPublicationbcbf3f33-253a-4b76-a55f-23e4caf28001
relation.isAuthorOfPublication.latestForDiscoverybcbf3f33-253a-4b76-a55f-23e4caf28001

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